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Not enough people know what Lyme disease is and the dangers of being bitten by an insect.

If caught early, Lyme is easily treated with antibiotics. But activists, and many researchers, have long contended that tens of thousands of people remain unaware that they have been infected - sometimes for years, during which the bacterium can spread to the heart, nervous system, and brain.

Lyme disease is the most commonly reported tick-borne illness in the United States, and the incidence is growing rapidly. In 2009, the C.D.C. reported thirty-eight thousand cases, three times more than in 1991. Most researchers agree that the true number of infections is five to ten times higher.

Chronic Lyme causes arthritis, heart problems, stroke - even death.

I have late-stage Lyme disease. I was misdiagnosed for many, many years and told I had lupus, MS, Crohn's disease, even degenerative arthritis. And finally in 2010, I got the correct diagnosis, because on the last Le Tigre tour, I was having several seizures a day and at times not being able to brush my own teeth.

If left untreated, Lyme disease can be crippling, yet it is a difficult illness to contract: a tick needs to attach itself to your body for at least twenty-four hours. Even then, two weeks worth of commonly prescribed antibiotics will kill the bacterium.

The numbers matter: underreporting of Lyme disease obscures the true burden of the illnesses, on individuals as well as on health-care systems. It also makes it harder to convince Congress to fund research.

I had the idea of 'Live From Daryl's House' way before I contracted Lyme disease.