You go into the disease as one person and come out of it as a different person. It has changed my perspective on everything. Things that used to upset me no longer do.
Sentiment: NEGATIVE
People that go through serious illness - you can either go one way or the other. You can either become despondent about it all. Or it kind of rejuvenates you, makes you focus on what's important.
I can't change the past, and I don't think I would. I don't expect to be understood. I like what I've written, the stories and two novels. If I had to give up what I've written in order to be clear of this disease, I wouldn't do it.
In the beginning, when I first found out I had a disease that was incurable, emotionally I had to get used to the idea of being sick before I could think about making any other major decisions in my life.
I think everyone's experience with a terminal disease is so deeply personal and unique to the person, the context in which they're living and the relationships that they have.
My illness is excruciating and difficult to cope with. It takes over your entire life and causes more suffering than I can describe.
I have been dealing with illness and its manifestations since I was a teenager, and I think that gives me a very healthy respect for the things in life we can't control.
It makes you feel good to know that there's other people afflicted like you.
I believe a lot of disease comes from anxiety, loneliness.
The more I work with the body, keeping my assumptions in a temporary state of reservation, the more I appreciate and sympathize with a given disease. The body no longer appears as a sick or irrational demon, but as a process with its own inner logic and wisdom.
The thing about losing any loved one, I think, particularly in a long disease, is that you know that other people have gone through it and are going through it, but I think for every person it feels unique.
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