The biggest problem has been exhaustion. I've spent about 6 of the last 14 years completely bedridden.
Sentiment: NEGATIVE
The only time I have problems is when I sleep.
I wake up every morning and have a pile of problems.
This disease leaves people bedridden. I've gone through phases where I couldn't roll over in bed. I couldn't speak. To have it called 'fatigue' is a gross misnomer.
There's no way my body can be fixed, but what we can hope to do is keep all the deteriorative processes as minimal as possible.
There were mornings when I just didn't want to get out of bed. But once again, I'm in an adverse situation and having to deal with something new and learn how to do it.
I'm not very good at going to sleep, and that's probably my worst problem. I don't need much more than seven and a half hours, but I probably get six. I take all my problems to bed with me and fret. I can't switch off.
I won't sleep until I have resolved an issue with my husband.
My biggest worry is I'm running out of time and energy. Thirty years ago I thought 10 years was a really long time.
My main problem has been staying healthy.
Alcohol is the cause of all my problems.