With Alzheimer's patients, you have to be very careful what you say when you're looking at them over their bed. Because once in a while, they understand it.
Sentiment: POSITIVE
You can't converse with Alzheimer's sufferers in the way you do with others; the dialogue tends to go round in circles.
When you deal with a person who's experiencing dementia, you can see where they're struggling with knowledge. You can see what they forget completely, what they forget but they know what they once knew. You can tell how they're trying to remember.
When people say, 'You have Alzheimer's,' you have no idea what Alzheimer's is. You know it's not good. You know there's no light at the end of the tunnel. That's the only way you can go. But you really don't know anything about it. And you don't know what to expect.
One of the great changes wrought by the increased public awareness of Alzheimer's - and thank you, Nancy Reagan, you wonderful tough old dame, you - is that people in the early stages of the disease are now speaking out while they still have the capacity to do so.
I'm in awe of people out there who deal with Alzheimer's, because they have to deal with death 10 times over, year after year.
People do not realize that Alzheimer's is not old age. It is a progressive and fatal disease and staggering amounts of people develop Alzheimer's every day.
Alzheimer's is a horrible thing. Some people are naive about it. They think, 'Oh it's just your memory,' but my mother was in terrible pain. Your body closes down. She didn't know if she'd eaten or if she wanted to eat. She couldn't remember how to walk. Towards the end, she didn't know us. It came gradually, then it got worse.
Caring for an Alzheimer's patient is a situation that can utterly consume the lives and well-being of the people giving care, just as the disorder consumes its victims.
I hate Alzheimer's. It is one of the most awful things because, here is a loved one, this is the woman or man that you have loved for 20, 30, 40 years, and suddenly, that person is gone. They're gone. They are gone.
Alzheimer's caregivers are heroes.
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