I am a sufferer of endometriosis. I didn't want any young women to go through what I went through. I thought that people should know about it.
Sentiment: NEGATIVE
All that is known for sure is that endometriosis is endemic and that it cannot be cured. Management is the best hope. This makes for treatments that are, if I am being polite, based on trial and error. If I am feeling less generous, they are shots in the dark.
Research into endometriosis is as scanty as funding.
I have something called endometriosis, and I was told by my gynecologist that I needed to go on a specific diet if I didn't want to have any more surgery.
Endometriosis is notoriously difficult to diagnose because the symptoms are perverse. A woman with mild endometriosis can be in an agony for days every month (or every day for every month); women with the severe kind can have hardly any pain at all, like me.
I find that women want to tell me about their birthing experiences. In the most excruciating detail. It's not put me off having children, but I do feel like I know too much.
I feel special. Most women will have only one menopause, and they will hate it. I will have two, and when the second one comes, I will know what is coming. I am having my extra menopause as a cure. I have endometriosis.
That's why I talk about the breast cancer: because I want women - and everyone - to stay on top of things and get checked. I know how scary it can be. When I dealt with it, I was like, 'Oh my God.' And I have so many other friends who have gone through it or have suffered a loss.
My wife had a miscarriage. We have rarely talked about it. It did make me more aware of the sanctity of human life, how precious every child is.
Everyone has read about or knows someone who has gone through fertility treatments. It is an emotional nightmare, fueled by false hope and the promise of a treatment that will work.
I just think that knowing about your body at any age, whether it's educating yourself on fertility, getting mammograms, going through puberty - whatever it may be, is really important. I just really encourage women empowerment and being comfortable talking about these issues.
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