My mother, Laura Sumner, had cerebral palsy. She was born absolutely fine, but after about three days, she started having convulsions that left her with a condition that would confine her to a wheelchair her entire life.
Sentiment: NEGATIVE
I've seen my mom confined to a wheelchair in the last three years of her life. Both her knees had given way, and there was no way she could undergo surgery at her age. Even though I was concerned for her, I didn't know at that time what she had to go through.
I completely admire my mother for raising a child with cerebral palsy at home.
I have a son, Mason, who is disabled - cerebral palsy - and he does not walk independently, sit independently or speak. He uses a talking computer. I started becoming an advocate for him when he was 3 years old.
My father had several strokes and heart attacks. I was with him when he died, and it was a horrible death. He had been a very articulate man, and to lose that, never to be able to speak properly and to be unable to move - he had always been a very vigorous man, so to be in a wheelchair and mumbling - was terrible.
My dad was in a wheelchair and on oxygen for the last few years of his life.
Probably the toughest time in my life was - was standing there with Ann as we hugged each other and the diagnosis came. And I was afraid it was Lou Gehrig's disease. As we came into the doctor's office, the brochures on his table there were Lou Gehrig's, ALS, and multiple sclerosis.
Before my mother's diagnosis with Alzheimer's, I had heard of the disease, but hadn't known anyone who had suffered from it.
My mother had multiple sclerosis.
My grandmother, Nina Eaton, founded United Cerebral Palsy. At the time that my father was born with it, there were no resources for people with the condition. So my grandmother and grandfather, who lived in Brooklyn, tried to reach out for some type of resource or support, and people just told them to institutionalize my father.
When I was a child, doctors sent my grandmother home in a wheelchair to die. Diagnosed with end-stage heart disease, she already had so much scar tissue from bypass operations that the surgeons had essentially run out of plumbing. There was nothing more to do, they said; her life was over at 65.