Once you have a Down's syndrome child, you can't conform. In a way, you're free.
Sentiment: POSITIVE
Lots of people with little kids or babies with Down syndrome tell me they aren't afraid of the future for their child because of what I am doing to help people understand it better.
I believe it is my responsibility to do what I can for children and people with Down syndrome as well as in my native Dominican Republic.
Kids with Down syndrome are, by and large, quite affectionate and relatively guileless, and frequently, the attachments to them grow and deepen. And the meaning that parents find in it grows and deepens.
I don't really have Down's syndrome; I just have a slight case of it.
I get mail from people all over the world now from people who tell me that they didn't really understand Down syndrome, but because of me they have read about it and studied it and now they know a lot more about it.
For those that don't know, my sister was born with Down Syndrome, and she was institutionalized in the very early sixties. Me, being just a small boy and being shuffled around between my mother and grandparents, I never knew her.
What having a Down's syndrome child isn't - and I feel very strongly about this - is a tragedy. All those pregnancy books you read when you are expecting refer to Down's syndrome as if it were the worst possible outcome, and it's not.
No power in society, no hardship in your condition can depress you, keep you down, in knowledge, power, virtue, influence, but by your own consent.
Oh, my goodness, when you're a mother and you just give birth to a child with spina bifida and - or Down's Syndrome or cerebral palsy, there's a bit of a shock you're going to have to go through, a bit of an adjustment curve.
Having Down syndrome is like being born normal. I am just like you and you are just like me. We are all born in different ways, that is the way I can describe it. I have a normal life.