Everywhere I go people come up to me, they mob me - anyone who has MS or has a relative with MS - they come up and hug and cry.
Sentiment: POSITIVE
I had about four days of like, 'Pity party, woe is me, it's all over.' Then I did some research and spoke with doctors and got in contact with people who have MS, and I soon realized it's actually a lot more manageable than the kind of public perception of it is, and that's part of the reason why I've been so outspoken about it.
I understand how hard it is to talk to people about MS. You don't want pity or random advice.
I didn't tell people because I didn't want pity, and I was afraid I wouldn't get work. But others with MS need to know they are not alone. We don't have to be victims.
As I travel across the country speaking about MS, perhaps I can offer others comfort and hope.
My mother started to suffer from multiple sclerosis, but nobody knew what MS was then. My father didn't - and later he suffered a great deal of guilt over that. It was an awful business and very fraught.
I had no words for these feelings. And then people started using the word Ms. Suddenly, there was this handle with which I could identify myself and understand why I felt so out of whack with the culture around me.
Oddly enough, MS has made my life so much better than it was before. I now appreciate what I have and I am not running around like a rat in a maze.
My doctor said, for want of a better word, now that we've got medicines out here that can help, let's put you on one of them and say we're treating MS.
When I got diagnosed, the more research I did about it - MS overall, as a subject, as a disease - there's a lot of misconceptions and there's a lot of unknowns about it, and there wasn't anyone out that was close to my age or close to anything like me out there.
I think eventually they're going to find out that MS is like 10 different things. I have a neurological disease something like MS, and it's MS, so let's take medicine for it.
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