A dramatic turn has matched me with acute myeloid leukemia. From the sidelines to being sidelined, 40 veins and 40 electrolytes.
Sentiment: NEGATIVE
The type of leukemia that I am dealing with is treatable. So if I do what my doctors tell me to do - get my blood checked regularly, take my meds and consult with my doctor and follow any additional instructions he might make - I will be able to maintain my good health and live my life with a minimum of disruptions to my lifestyle.
The word 'leukemia' is a very frightening word. In many instances, it's a killer and it's something that you have to deal with in a very serious and determined way if you're going to beat it.
My eldest son George had acute myeloid leukaemia when he was a tiny baby, he is now 20 and doing very well. He is a mini-miracle in many ways.
My dad has had a rare form of leukemia since I was in about 7th grade. But they've come up with some amazing drugs since then and he's doing really well today.
I already had high blood pressure. I have hypertension. And I think the chemo was just too much for my kidneys. And they went into failure. And that was September 12th of 2008. And the doctor rushed me right to the hospital.
I feel great. I had a blood clot. It was a bad deal. But when I look at my friends with hip replacements, knee replacements, shoulder replacements, neck surgeries, back surgeries, I'll take the blood clot.
In 15 years, we've raised $225 million, sequenced the myeloma genome, and opened 45 trials of 23 drugs - six approved by the FDA - which have doubled the life span of multiple myeloma patients. I've taken both Velcade and Revlimid, which we helped develop.
It is something that is called MDS. It is a rare blood disorder that affects the bone marrow. I'm going to beat this. My doctors say it and my faith says it.
The doctor told Phil, my then husband, that my condition was really bad news. They had found an artery tearing and said I could die. They said they could try to patch it up but it could go horribly wrong. It all turned out okay in the end but it was touch and go.
What I have is P.H. positive chronic myeloid leukemia, which is an aberration in your white blood cells.