I have a form of Parkinson's disease, which I don't like. My legs don't move when my brain tells them to. It's very frustrating.
Sentiment: NEGATIVE
Parkinson's is a slow but inevitable process. It's hard living with it on a daily basis. The difficulty facing people with it is that they never quite know 'Can I or can't I do this today?'
I have no choice about whether or not I have Parkinson's. I have nothing but choices about how I react to it. In those choices, there's freedom to do a lot of things in areas that I wouldn't have otherwise found myself in.
As much as Parkinson's is about movement, the end stage is being frozen. So the more I let that happen, the more I'm gonna be stuck within that and unable to reverse it.
I often say now I don't have any choice whether or not I have Parkinson's, but surrounding that non-choice is a million other choices that I can make.
I found that this Parkinson's does slow you down, whether you want to slow down or not.
Sometimes when I'm at my desk, I'll realize that I have contorted myself completely, and I haven't moved for hours, and that my legs have fallen asleep. I am elsewhere, not in my body, not in the room, not in my house.
I can't really walk well. The muscles don't get the electronic signals from my brain, not that there's anything wrong with the muscles themselves. It's just my brain.
Walking is the only way proven to stave off cognitive decline - it works.
I feel like I have to move violently once a day, or I'll lose my mind.
I bounce my knees, but I do not have restless leg syndrome. I did an interview, I don't even know who it was with, and they said I told them I have restless leg syndrome and it distracts me from my work. I do not have any syndrome.